23 May 2012

Freezing cold. Despite socks and my hands being nearly covered, my toes and fingers feel as though they’re going to fall off.

Also, upper back, right between the shoulder blades and radiating out across my back to my right arm, and down the back of that. Joy.

Neck and right shoulder are also feeling really achy and creaky. And my hip Yes, might as well just colour the whole damned thing in.

The area over my right kidney is really sore. An occasional sharp moment but mostly it’s this horrid persistent thumping ache, like I’ve been hit, but it never wanes. I’m getting the same feeling in the right side of my chest as well. More joy.

Not too surprisingly, it’s giving me a headache, and I’ve been getting sharp, sudden onset headaches that, fortunately, don’t last all that long, but they are fairly brutal and result in nausea.

That eye twitch? Yeah, that’s not going anywhere either.

Yesterday, I had to force myself to go out for a walk; I really didn’t want to go, and I may have to force myself again today, as the idea of being outside in bright light hurts me, even just the thought of it.

Needless to say, it’s all making me feel anxious/sad. Blech

yesterday – 300 mg plaquenil, 8x tylenol, 1x gravol

21 May 2012

Raining. Which means pain, gah!

My upper back isn’t as terribly sore as I thought it would be but I’ve had to return to my previous habit of taking several ‘lie down’ breaks in the day. It was nice to not have to do that for a while.

The worst of the pain is in my joints. My hands, especially my right one, up past my wrist, is very achy. It’s also been ‘crunching’ a fair bit. I’ve tried to keep it busy and keep it moving, but the cold, damp weather is NOT helping.

Toes – especially my left toes – are feeling the same as my hands/wrists, with the addition of being freezing cold, whether I wear socks or not. The cold just makes the ache all the sharper. I’ve also tried to keep flexing them to keep them moving, but it’s painful.

My hips, shoulder (right) and neck are also feeling very stiff and sore. I keep thinking my neck is out, but it’s just really achy.

With the wet weather, the ache in my chest (upper, right) is more intense, so much so that it’s hard to breathe sometimes and I end up wheezing. It doesn’t help if I lose it and start laughing over something. I keep thinking I’m going to black out from lack of air when I do that. Also, the same yucky deep echoey pain over my right kidney. Increased urge to pee. Joy.

That tic in my left eye continues, and continues to drive me a little crazy. I did a very close search for any stray eyelashes, eyebrow hairs, or tiny, almost invisible hairs that could be irritating the area and making my eye twitch but so far, nothing. It’s annoying.

With the spinal shot having worn off, I’m back to crazy fatigue in the middle of the day, so it looks like I’ll have to be squeezing everything in before noon again.

yesterday – 300 mg plaquenil, 8x tylenol

19 May 2012

Sore, but not too bad.

The worst is my upper back, which was bad enough to wake me up this morning. As odd as it sounds and as much as I hate it, this is growing familiar again, after a few months somewhat free from it, so I am better equipped to push it into the background.

Hands, toes, hips, shoulder (right) and neck all feel quite achy and sharp. The weather is about to change to cold and rainy again. Crocheting was painful last night and typing is sending jarring stabbiness into my (right) wrist.

Along with the cold, I’m dealing with sharp pains in the right side of my chest, as well as over my right kidney area.

And my left eye continues to twitch

But all in all, not too bad.

yesterday – 300mg plaquenil, 8x tylenol

17 May 2012

The ‘stabbed in the chest’ feeling is easing back a little more today, but it’s leaving a terrible fatigue with it. I haven’t even gone for a walk this morning (and have absolutely no desire to do so). I managed just over 4 miles yesterday, in two chunks, but the lest one was brutal. Hips, shoulders – hell, all my joints – were just shouting at me once I got home, and I flaked out shortly afterward.

My upper back felt awful and I would have had to lie down anyway. It became so sensitive that even a slight bump against my right arm felt as though an iron bar was swung into my back and shoulder. Yes, the iron bar is back

Now I just feel very tired, and a little down because of it.

I’m going to have some coffee and watch the news – hopefully this will perk me up enough so that I can dye my hair (blue this time!)

yesterday – 300 mg plaquenil, 8x tylenol

16 May 2012

Yesterday was a pretty rough day. With my spinal injection wearing off, my back/chest pain is back to its previous levels. On top of that, I got whacked in the chest with an elbow yesterday afternoon (it was an accident, but damn!). It wasn’t much of a whack either but it must have got me in just the right place.

Immediately I felt as though I had been winded and couldn’t suck enough air in. It felt as though I had been stabbed right through the chest and into my back. Then I went into what I can only describe as a weird sort of shock. I was freezing cold, my toes being the worst. Nothing I did had me feel warm. I put on extra socks and curled up under a few blankets in the hope that this would help but it didn’t. Fatigue hit me like a truck and I crashed pretty hard, waking up several hours later, still sore.

Still sore this morning but nowhere near as bad as last night. Joy.

My hands and toes have been feeling very achy, very crunchy for a couple of days now, and both hips also hurt. I think our hot weather might be changing? In any case, ow! My skin has felt itchy and every once in a while I’ll get a random stabby-itchy spot on my skin that feels like a bite/poke something or other but nothing is poking or biting me. Right side over my kidneys hurts pretty badly. Blech.

I take my tylenol roughly 5 hours apart and I was really clock watching yesterday because I’d just taken it and within an hour or so, really needed to take more but couldn’t yet. The pain was bad enough that it made me feel nauseous, so I took a gravol and waited until I could take more tylenol. Sucked, hugely.

Needless to say, my upper back is killing me this morning so I’m not likely to stay on long

yesterday – 300mg plaquenil, 8x tylenol, 1x gravol

14 May 2012

I slept for the better part of yesterday. One of those ‘pass out so hard you can’t wake up’ kind of sleeps. I guess I must have needed it. And yet, I feel that I haven’t slept at all. Ugh

My hips hurt all day yesterday and that doesn’t seem to have eased off any today. My left toes and right hand/wrist are also really sore today (and what a weird combination that is!) Also, my right side over my kidney hurts like hell. And my skin itches. Joy. Oh yeah, and my left eye continues to twitch. This would almost be funny, I suppose.

I did manage to get out for a walk yesterday and I will try to do the same today, but it’s going to be a short one – I’m still feeling done in. Ugh.

yesterday – 300 mg plaquenil, 8x tylenol, 1x gravol

12 May 2012

In two batches, I walked about 7 miles yesterday. Not surprisingly, my hips hurt. I did my best to stay covered up (it was sunny) and drink lots of water and juice and still felt super wiped out by the time I got home. I guess that shouldn’t be all that surprising either.

What I hate even more than the sore hip is the water retention. Given previous tests, and all this wacky behaviour, I really am starting to fear for my kidneys. Blech.

But still, did I mention the walk part? Yeah, that was nice It got quite warm out, so it was nice on my upper back as well.

Toes and hands/wrists feel especially achy today, but not as bad as my hips. Really hope that settles down.

I’m torn about continuing with the naproxen. It does help ease the pain a little but every time I take it, it worsens my water retention. Argh. I think I may have to shelve it until I absolutely can’t stand it any more.

Yesterday: 300 mg plaquenil, 8x tylenol